1st Journal Entry to my Newborn Daughter

How am I going to raise a girl, and help you establish a strong self image?
How do I teach you what I myself don’t know how to be?

JOURNAL FROM MOM TO JRW

1/10/02

Hi JR. Welcome to the world. What to say… It’s hard to arrange all the things I’d like to say to you here, now, on this 6th day of your life, outside of me. You’re sleeping on the bed next to me as I type this into my laptop. You’re sure cute. And small!

For as long as I can remember, I wanted to have two kids. I always pictured having two boys. When I found out you were a girl it scared me a little. A lot, actually. How am I going to raise a girl, and help you establish a strong self image? It’s easier with boys. Socially, boys are indoctrinated with a strong self-image. But in my experience, that’s not been the case for girls. It’s been, and still is very hard for me to believe in myself, to trust myself, to like myself, for the greater part of my life. I don’t want that for you. So how do I teach you what I myself don’t know how to be?

I wanted two kids so that you and your brother can have someone of your own generation to grow with, to share life with, to align with. Your dad and I are older parents, two generation drops from you and your brother. We didn’t intend it to be that way. At least I didn’t. I wanted kids much younger, but even with vigorous searching I didn’t meet anyone I wanted to marry until your dad, when I was 37. We tried having kids straight away, but I had a lot of miscarriages (7), and it took us two years to have your brother and another 2 plus to have you. After losing 5 pregnancies before your brother, I was scared out of my mind that I would never get to have any children.

After your bro, I was sure all those loses were behind me, and your dad and I tried for you 6 months after your brother was born. But I lost that baby, and another one a year and a half later. And I didn’t think I could handle another loss. So we stopped trying so hard. And 4 months after that last loss, you were conceived. And I was so afraid I’d lose you too. But you hung in there, and saved my sanity. And you were born to me on January 4th, 2002. Thank you! Thank you! Thank you! I kiss your head with my words.

I hope I serve you well as your parent. I hope we can grow to be good friends. I’m not quite sure how to be a mom to two children and give you both what you need. As I’ve told your brother, and I am telling you now- I’m sorry for the times you will feel I was not there for you. I hope they will be few. And I hope you can forgive me for the times you will feel you are left wanting. I promise to do my very best, and to make you and your brother the highest priority in my life. I love you more than you’ll ever know, unless you get lucky, like me, and have children of your own.

I’m looking forward to you growing. Infancy is a hard stage for me, as I don’t really know anything about you, who you are, how you are, what kind of person you will want to be, and become. I hope for you that you are kind, that you care about the world around you and the people in it. I hope for you that you are strong and stand by your convictions with actions. I hope for you that you are wise and understand when compromise is necessary as it will be so much of your life. I hope for you that you choose wisely whom to love and that you understand that love is an action and takes constant work to maintain. And I pray that you will always know that I deeply and passionately love you, my beautiful daugher.

Welcome to earth, JRW! So very glad to meet ya!!

Technology and Choice

Technology, like amniocentesis, gives women a window into the future of their child’s health. But it also poses an impossible choice when the view is not the healthy baby all parents pray for…

I was 17 weeks pregnant, with my first baby, when the results of an amnio told me that the wanted child I was carrying was not healthy. I have always been pro-choice, and never considered it a moral dilemma to terminate a fetus with severe Down’s Syndrome, or other life threatening, or debilitating abnormalities. Although I was aware that my advanced age of 39 increased my risk of potential problems, I was totally unprepared for the results from this technology, and the choice I would have to make.

We received the news on a gray Thursday afternoon in late December that the baby girl inside of me had an extra X chromosome, also known as Trisomy 47, XXX. While waiting for clarification from a genetic counselor on the following Monday, I spent the next three days searching for information. I sat in the old, stone library crying uncontrollably with each line I read from a Psychology Today article on XXX. “Severe learning disabilities.” “Severe emotional disabilities.” “Slow motor development.” “Shy.” “Withdrawn.” I rubbed my swollen belly, trying to feel my daughter inside of me, fear welling up and gathering momentum. My stoic husband sat next to me, silently reading along. On the way home we talked, we cried, we argued about what to do next. We decided to wait to make any decisions until we could get more information, except there was little out there, and everyone we spoke with had some kind of agenda.

The genetic counselor insisted that the information we had gathered over the weekend was outdated and biased. A few minutes later she called in a staff OB/GYN who showed us a picture of a beautiful 8-month old XXX baby, swinging in her electric swing on a whitewashed, sun drenched porch, smiling happily for the camera. The doctor then asked us if we would be willing to participate in her study if we decided to “keep our daughter.” During the following week, we spoke with doctors from around the world with any knowledge of XXX, who gave us a positive or negative spin depending on their personal views on abortion. We spoke with a social worker that dealt with the parents of handicapped children, who was subtly but clearly for termination. I solicited advice from my parents. My father (who never changed a diaper in his life) told me to keep her. My mother said not to. We spoke with parents of XXX children. All of the children had suffered learning disabilities, delayed motor skills, were withdrawn, and had required special education. But all the parents loved their daughters.

A decision had to be made quickly, before I felt her moving inside me. I knew if I felt her I could never give her up. To a certain degree, she was still an abstraction, even though on ultrasound I had seen her entire body, each vertebrae of her backbone, the two hemispheres of her brain, her tiny feet and hands moving about. “The ghost in the machine,” my husband had called her. I held my belly and begged my daughter to tell me what she wanted me to do, knowing the decision would be mine, feeling the weight of that decision ripping apart the fabric of my tightly woven self-image. What kind of person was I that I would kill my daughter because she wasn’t perfect? Faced with the probability of a slow child, I realized my expectations for [and from] my children were more than I had considered. Maybe too much.

It occurred to me that most of us go through life thinking we are generally good, honest, caring people because this view is rarely challenged, as most of our actions aren’t based on critical, pivotal, character-defining decisions. From the moment I got the amnio results, I knew my life would never be the same again. Technology had given me insight and now forced me to make a choice.

Fear of the unknown was the catalyst for our decision to terminate the pregnancy. Disappointment in our expectations, and doubting our own abilities, pushed us into the decision that to this day I find shame in. But I honestly don’t know how the other decision would have played out. One of the mothers of an emotionally and physically disabled 8-year old XXX child told me that if she had known that her child had the anomaly before she gave birth, she doubts she would have chosen to keep her. I guess when we make a decision with no good choices, the decision we make will never be okay. The trick is, finding a way to live with that.